Deutsch | Français | Italiano | English

 

The Swiss Childhood Cancer Registry collects data about diagnosis, treatment and prognosis of all cancer illnesses in children throughout Switzerland.

1. Delivers from representative, national data: Number of new illnesses (incidence), survival rates, temporal trends and regional distribution.
2. Contributes to the investigation of genetic risk factors caused by the environment for cancer in children and possible preventative measures.
3. Collects validated information about long term effects of cancer in children. Development of strategies to prevent late results or to reduce them.
4. Delivers from a reliable data source the basis for the planning and high-class control for the healthcare of children with malignant illnesses in Switzerland.

Milestones 2008 - 2011:

1. Conduct different research projects on causes, treatments and prognosis of cancer in children (projects).
2. To set up a regular data exchange with cantonal cancer registries and other routine data sources.
3. To improve the coverage (complete registration of all children diagnosed with cancer in Switzerland, wherever they are treated).
4. To complete missing information for existing patients

Milestones 2004 - 2007:

1.  We optimised data protection measures and obtained a special exemption from the Expert commission for the professional secrecy in medical research in the Federal Office of Health (2004). In 2007 this was extended to a general registry permission.
2. We completely renewed content and structure of the database, diagnostic coding, data flow and follow up survey and adapted them to international standards.
3. We evaluated content, completeness and quality of the database and developed measures to improve it.
4. We developed joint research projects with other partners.