Who are we?
The Swiss Childhood Cancer Registry (SCCR) is a national, population-based cancer registry for children. It collects data on new cancer diagnoses and concurrent medical conditions and documents the treatment and long term follow-up. Through this it contributes to understanding causes of cancer diseases in children with the ultimate goal to prevent them, and it helps to continuously improve treatments and increase cure rates while aiming to avoid or minimise late effects.
The SCCR is located at the Institute of Social and Preventive Medicine (ISPM) at the University of Bern and closely co-operates with the Swiss Paediatric Oncology Group (SPOG). All Swiss children’s hospitals which care for children with cancer notify each newly diagnosed patient to the registry and send annual updates thereafter. Data from approximately 9305 patients are registered (status as of 20/11/2012).
The Swiss Childhood Cancer Registry is a member of the International Association of Cancer Registries (IACR) and the European Network of Cancer Registries (ENCR).
What's new in the childhood cancer registry?
27.03.2013 Position paper of the Swiss Childhood Cancer Registry for the new national law for cancer registration
The Swiss Childhood Cancer Registry (SCCR) and the Swiss Paediatric Oncology Group (SPOG) welcome the presented draft for the new law on cancer registration. [more]
24.12.2012 Annual Report 2011-2012 of the Swiss Childhood Cancer Registry
This fifth annual report provides an overview of the organisation of the SCCR and describes incidence and prognosis of cancer in children and adolescents in Switzerland from 1976 to 2011. In addition, it summarises current research projects of the Swiss Childhood cancer registry and lists all...[more]
26.05.2012 Excellent quality of life after childhood leukemia in Switzerland
Young adults, who had been treated for leukaemia in childhood, report a similar quality of life as the general population. This was the case even if they had suffered a relapse and needed intensified treatments. Insights from the nationwide Swiss Childhood Cancer Survivor Study.[more]