The Swiss Childhood Cancer Registry is a national, population-based cancer registry for children. It collects data on new cancer diagnoses and concurrent medical conditions and documents the treatment and long term follow-up. Through this it contributes to understanding causes of cancer diseases in children with the ultimate goal to prevent them, and it helps to continuously improve treatments and increase cure rates while aiming to avoid or minimise late effects.

The SCCR is located at the Institute of Social and Preventive Medicine (ISPM) at the University of Bern and closely co-operates with the Swiss Paediatric Oncology Group (SPOG). All Swiss children’s hospitals which care for children with cancer notify each newly diagnosed patient to the registry and send annual updates thereafter. Data from approximately 5900 patients are registered (status as of 8th September, 2008).

The Swiss Childhood Cancer Registry is a member of the International Association of Cancer Registries (IACR) and the European Network of Cancer Registries (ENCR). 

What's new in the childhood cancer registry?